Ethen's 5 day stint at Scottish Rite Children's Hospital for his extended EEG with video started on September 22, and ended September 26th. The idea was to capture seizure activity, and to try to get an MRI done during an actual seizure.
Well....he didn't have any. Not only that, he was taken off all of his medication by Tuesday, and his EEG was NORMAL the entire time!! He has never had a normal EEG in his life! So now what?....Well, he was discharged Friday night, put back on all of his meds, and basically now we wait. If he has no more seizures over the next 2 years, then he can be taken off his meds.
Never in a million years did I expect a normal EEG - never, never, never. So maybe, just maybe, we're witnessing a miracle....
1 comment:
Listen Ethen, when the doc gives good drugs you can't act all "normal" when he takes them away :-) If you don't have to buy Ethen meds any more do you think you can get us some "Mothers little helpers?" ;-) We are so happy to hear everything went so well and Ethen came through with flying colors.
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