Saturday, September 27, 2008

Do You Believe In Miracles?

I wasn't sure that I did, but I'm thinking I might just start....


Ethen's 5 day stint at Scottish Rite Children's Hospital for his extended EEG with video started on September 22, and ended September 26th. The idea was to capture seizure activity, and to try to get an MRI done during an actual seizure.


Well....he didn't have any. Not only that, he was taken off all of his medication by Tuesday, and his EEG was NORMAL the entire time!! He has never had a normal EEG in his life! So now what?....Well, he was discharged Friday night, put back on all of his meds, and basically now we wait. If he has no more seizures over the next 2 years, then he can be taken off his meds.


Never in a million years did I expect a normal EEG - never, never, never. So maybe, just maybe, we're witnessing a miracle....


Sunday, September 14, 2008

Summer of 2008

And what a summer it's been!

It seems to have gone on forever ;-)...

My baby Jackson turned 4 in June (I know - HOW did that happen!). There are a couple of pictures below of his big birthday bash at Gymboree - he had a blast, and so did his friends, and Mimi, Pop, and Nana also joined us -- it was great!
















We spent the 4th of July in Ohio visiting family...

O-H-I-O is a long way from Georgia!!



Visiting Great Grandma & Grandpa Cook


Jackson has been taking swimming lessons all summer and will continue through the Fall. He also began karate lessons a few weeks ago (which he LOVES). AND on August 11th, he started Pre-K! That's real school folks! Here in Georgia all 4 year olds are able to attend Pre-K for 5 days a week (6 hours a day) compliments of the great GA Lottery -- it's awesome, and he loves it as well!

The Karate Kid :-) 1st day of Pre-K



Ethen has been doing better over the last month or so, but is on a new "temporary" drug (Dilantin) which we hope will get him through to September 22 seizure free. On that date, he will be admitted at Childrens Healthcare at Scottish Rite for something called a VEEG (extended EEG with video monitoring) which will give us a much more thorough picture of his seizure activity, and if we're very lucky, may qualify him as a surgical candidate. Sounds scary -- but it's good -- trust me.

Nope - that's n0t medication, it's a green soap crayon-- he's clearly well enough to get into trouble!

We went up to visit the Keiffer's over Labor Day - always a good time! I went to take a shower, and when I came out, LeAnne had dressed all of the boys up as fairies (literally) -- FABULOUS!!

One of the fairies.... Ethen refused to be a fairy-- he wanted to be a warior

Jackson is thrilled to be with Rhys....Rhys? Well, not so much...